Tova was born with a rare skin disease called junctional epidermolysis bullosa, it cause her skin and internal organs to be extremely fragile and weak! I added a photo on this post of a great explanation of her disease! At this time there is no cure for this disease! Despite her disease she’s still a very happy baby who lives to eat, sleep, play and she learns a lot from @Ms Rachel like sign language:) #junctionalepidermolysisbullosa #family #famliytime #awareness #ebawarness #findacure #findacu
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Tova was born with a rare skin disease called junctional epiderm…
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TikTokbutterfly.child.3
Epidermolysis Bullosa (EB), also known as ‘butterfly skin,’ is a...
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Epidermolysis Bullosa (EB), also known as ‘butterfly skin,’ is a...
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FacebookAnna Chacon, MD FAAD
7.1K views · 154 reactions | Today is National Doctor’s Day. More than 85 million Americans are affected by skin disease each year. Dermatologists are critical members of the health care team, working with colleagues across disciplines to treat the whole patient. In this video, patients share how serious skin diseases have affected their lives and their families. www.skinserious.org | American Academy of Dermatology | Facebook
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Ewan has a very rare skin disease called Epidermolysis Bullosa (also known as EB or the Butterfly Disease). His skin is incredibly fragile - blistering or tearing easily at the slightest bit of friction. Ewan’s bandage changes was something that we had to get used to quite quickly after we left the hospital. And we had to figure out ways to keep him calm, because it could be quite painful. But he’s been a strong little guy from the start! 🤍 #epidermolysisbullosa #butterflydisease #ebawareness #
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