Tova was born with a rare skin disease called junctional epidermolysis bullosa, it cause her skin and internal organs to be extremely fragile and weak! I added a photo on this post of a great explanation of her disease! At this time there is no cure for this disease! Despite her disease she’s still a very happy baby who lives to eat, sleep, play and she learns a lot from @Ms Rachel like sign language:) #junctionalepidermolysisbullosa #family #famliytime #awareness #ebawarness #findacure #findacu
0:10
Tova was born with a rare skin disease called junctional epiderm…
295.6K viewsJan 4, 2025
TikTokbutterfly.child.3
Epidermolysis Bullosa (EB), also known as ‘butterfly skin,’ is a...
1:23
Epidermolysis Bullosa (EB), also known as ‘butterfly skin,’ is a...
44 views2 weeks ago
FacebookAnna Chacon, MD FAAD
Siblings Nur and Muhammad are often referred to as ‘butterfly children’ because their skin is as fragile as wings. They were born with a rare skin condition called epidermolysis bullosa. | SBS News
3:43
Siblings Nur and Muhammad are often referred to as ‘butterfly child…
137.4K viewsJul 20, 2020
FacebookSBS News
Explanatory video - Living with Epidermolysis Bullosa
Explanatory video - Living with Epidermolysis Bullosa
2.2K viewsNov 25, 2020
YouTubeDEBRA Austria – Schmetterlingskinder
Living with Skin that Keeps Falling Off and Just Wanting to Play (Epidermolysis Bullosa)
10:41
Living with Skin that Keeps Falling Off and Just Wanting to Play (Epid…
1.5M viewsNov 22, 2019
YouTubeSpecial Books by Special Kids
Living in a Body of Open Wounds with Less than Half His Skin (Epidermolysis Bullosa)
14:24
Living in a Body of Open Wounds with Less than Half His Skin (Epid…
8.9M viewsDec 6, 2018
YouTubeSpecial Books by Special Kids
Ewan has a very rare skin disease called Epidermolysis Bullosa (also known as EB or the Butterfly Disease). His skin is incredibly fragile - blistering or tearing easily at the slightest bit of friction. Ewan’s bandage changes was something that we had to get used to quite quickly after we left the hospital. And we had to figure out ways to keep him calm, because it could be quite painful. But he’s been a strong little guy from the start! 🤍 #epidermolysisbullosa #butterflydisease #ebawareness #
0:21
Ewan has a very rare skin disease called Epidermolysis Bullosa (als…
3.4K views11 months ago
TikTokida.irvine8
4:30
Raising a butterfly child: Hayden Esser's life with epidermolysis bul…
51.7K viewsMay 7, 2017
YouTubeColumbia Daily Tribune
7:37
Epidermolysis Bullosa: Blistering Skin I The Feed
154.3K viewsFeb 24, 2014
YouTubeSBS The Feed
30:10
Dean Clifford - (Epidermolysis bullosa aka Butterfly Skin Disease…
2.4K viewsApr 23, 2023
YouTubeListenABLE
1:53
SkinSerious: The Impact of Skin Disease on Patients
10.9K viewsApr 18, 2017
YouTubeAmerican Academy of Dermatology
6:39
The Butterfly Effect | Stanford Medicine
38.3K viewsJul 7, 2015
YouTubeStanford Medicine
How Do You Know if Your Butterfly Rash Is From Lupus?
Oct 17, 2023
health.com
Five-Year-Old Launches Campaign For People With Butterfly Skin Dis…
Oct 23, 2017
evoke.ie
5:59
Meet Ella Murray: The 9-year-old with skin as delicate as a butterfly'…
98.5K viewsMay 30, 2017
YouTubeWashington Post
5:15
Rowan's Story
773.2K viewsNov 27, 2018
YouTubeEB Research Partnership
1:52
Bullous Pemphigoid Symptoms, Treatment, and Causes
17.8K viewsSep 5, 2022
YouTubeUSMLE pass
1:20
17-Year-Old 'Butterfly Child' with Rare Skin Disease Dies: He Was a …
Apr 6, 2018
PeopleChar Adams
48:41
The Boy Whose Skin Fell Off | Medical Documentary | Only Human
70.8K viewsJul 13, 2020
YouTubeOnly Human
6:09
The Boy With Butterfly Skin
1.4M viewsOct 26, 2012
YouTubeJoe Purdy
They ask for help for a child with "butterfly skin" disease in Pinar d…
Jul 3, 2024
cibercuba.com
8:51
Bacterial Skin Infection - Cellulitis and Erysipelas (Clinical Presentati…
351.5K viewsMay 9, 2018
YouTubeArmando Hasudungan
5:26
Skin Rash, Causes, Signs and Symptoms, Diagnosis and Treatm…
671.9K viewsJun 28, 2021
YouTubeMedical Centric Podcast
3:01
Jonathan's body is so fragile that the slightest touch can cause seri…
117.6K viewsFeb 21, 2022
FacebookHallelujah
1:03
🦋 Butterfly Skin Disease Explained #RDEB #health
352 views4 months ago
YouTubeunpacking us
2:45
121K views · 1.8K reactions | "BUTTERFLY CHILD": A baby who…
121K views1 week ago
FacebookFOX 10 Phoenix
3:02
Cutaneous Lupus - Yale Medicine Explains
117.8K viewsMay 8, 2019
YouTubeYale Medicine
4:26
Skin Infections Uncovered: What Your Dermatologist Wants You to …
81.9K viewsJul 22, 2023
YouTubeMedical Centric Podcast
12:55
Skin Cancer: Different Types, Causes, Prevention & Treatments …
757.3K viewsMay 25, 2022
YouTubeDr. Sam Ellis
1:51
Rosacea And Lupus
31.2K viewsMar 2, 2017
YouTubeNever Have Dry Skin
See more videos
Static thumbnail place holder