668K views · 9.3K reactions | My skin is as fragile as a butterfly wing - and there's no cure  #fbreels #borndifferent #skincondition #rarecondition #EB #epidermolysisbullosa #geneticcondition | Born Different | Facebook

Epidermolysis bullosa . Epidermolysis bullosa (EB) is a very rare genetic skin condition and in worst cases can be fatal . Its diagnosed from birth by the neonatal team . This condition has 3 types and can vary from mild to severe. At present there is no cure of the condition and treatment is targeted to prevent complications . . In Pakistan there is lack of support for the children (and their parents ) with the condition .These children and their families need ongoing support with regards to tr